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Please use this identifier to cite or link to this item: http://hdl.handle.net/20.500.12001/24766

Title :Japanese fathersʼ experience with children with profound intellectual and multiple disabilities
Authors :Hasegawa, Tamayo
Koja, Yasuko
Endoh, Yumiko
Tamashiro, Yoko
Authors affiliation :Doctoral program, graduate school of Health Sciences, University of the Ryukyus
Department of Nursing, Faculty of Medicine, Fukuoka University
Department of Health Sciences, Faculty of Medicine, University of the Ryukyus
Issue Date :2019
Publisher :琉球医学会
Type Local :雑誌掲載論文
Type (NII) :Journal Article
ISSN :1346-888X
Abstract :Children with severe or profound intellectual and multiple disabilities (PIMD), who have high medical care needs, are under constant pressure of survival and their growth processes are difficult to predict. Although research has shown significant psychological and social burden on parents taking care of such children, research on Japanese fathers has been scarce. This study aimed to clarify the suffering and judgment of Japanese fathers following the birth of a PIMD child and describe their experiences living with a preschool PIMD child. We also discussed the effect of nursing support on maintaining the dignity of fathers by deeply understanding the nurture experience. Verbatim records of semi-structured interviews conducted with eight fathers were analyzed based on the Modified Grounded Theory Approach. Twenty-eight concepts were generated along with the following four categories: (i) fear for the childʼs life and a feeling of being left out of information sharing, (ii) struggle to continue home care, (iii) acquisition of nursing skills and collaboration with wife, and (iv) response to the childʼs precious growth. Despite challenges in caring for a child with PIMD, in-home medical and nursing care teaches fathers the significance of being a parent. These findings highlight the relationship between fathers of PIMD children and healthcare workers, who can provide support for fathers as dignified caregivers.
Rights :琉球医学会
URI :http://hdl.handle.net/20.500.12001/24766
Citation :琉球医学会誌 = Ryukyu Medical Journal Vol.38 no.1-4 p.1 -12
Appears in Collections:Ryukyu Medical Journal

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